Different Day, Different View

The familiar droning sound of measured chemo drugs dripping from the IV tower into Dylan’s chest port has returned us to this place: the 12th floor of Swedish Hospital in Seattle. A few things have changed since our departure, the Oncology floor is filled with patients which saddens […]

Axe Handles

A few days back, when Dylan’s throat was inflamed and any movement caused back pain and headaches, I said to him, “You know I’m really proud of how you have been brave through this whole thing.” “I’m just laying here. I haven’t been brave,” was his response. What is […]

Home

Three weeks and one day, that’s how long Dylan’s first round of chemo lasted. Yesterday, around 9 am, Joanna came into room 1266 and said to Dylan, “Well, Bud, your counts are up to 1800. Want to go home today?” “More than anything,” Dylan said. 1800 was a […]

Learning to Say Yes. 

Three weeks, it’s now been three weeks, we thought be would have taken Dylan home by now, but we haven’t. Instead we watch blood counts, brush the dead hair off his pillow more and more often, and wonder why his body hasn’t snapped back into place. Everyone assures […]

Guest Blogger: Momma

​Jon hasn’t contributed to the blog in days because we’ve come through those initial moment-by-moment swings of panic, denial, and reactions to the different daily chemo cocktails and their cruel/miraculous side effects that make for fascinating reading material. Dylan has come out the other end of the first […]

Where We’ve Been

Today, makes two weeks in Swedish Hospital in Seattle, it seems longer. I know all the nurses by first name, I know when blood draws are, I know that Dylan’s once distended belly hasn’t grown noticeable, and I know he feels better, but I also know the cancer […]